Dusty Mathey´s story

“I don't want people to feel sorry for me. I need to work; I want to accomplish something in my life.”
Goal to get off the TPN
00:00 - 00:56
The disease
01:09 - 04:32
TPN and line infections
04:33 - 05:44
Work life
05:51 - 07:33
Evaluation of transplant option
07:34 - 09:13
Intestinal rehabilitation program
09:19 - 12:35
Trying to live a normal life
12:35 - 14:44
Talk to your doctor
14:59 - 17:30
Meeting a girlfriend
17:33 - 18:38
Living with SBS
18:40 - 21:33
Hopes for the future
21:58 - 24:22
19 Jun 2019

Dusty is an active outdoor person who wants to accomplish things in life. He lost most of his jobs due to his illness but he didn´t give up. Today Dusty runs his own company and he would love to get rid of his dependency on total parenteral nutrition (TPN), as his biggest desire is to jump in the ocean.

Don´t ever give up

Dusty´s intestinal problems started as a young boy. One day at school, he became severely bloated and sick. He went to see multiple doctors, but nobody knew what was wrong. Many years went by without a diagnosis. He managed to go to college and earned a degree despite missing many days due to illness. “Life was horrible. I didn't do anything. I went to school. I tried working. I laid at home sick a lot.” At one point, the doctors told him that he would probably be bed-ridden for the rest of his life “if I'd listened to them, I probably would be dead by now.”


Set goals and do not let your disease limit you

Dusty asked his doctor what he was going to do with his life. Shortly after, Dusty started a snow removal and lawn mowing company. He was fired from all of his other jobs in the past because he would get sick in the mornings or in the afternoons. “Nobody wants an employee like that. It's better to venture on my own and see where the road would take me.”

Talk to your doctor and keep seeking optimal care

After several years of living with the disease, Dusty thought to himself, "There's got to be a cure out there!" He explored several different options, and years passed before Dusty entered into an intestinal rehabilitation program. Dusty took advice from one of the doctors: “He’s the only one that ever said a surgery may work. So when I had somebody say there might be light at the end of the tunnel, I'm going to jump on it.” The surgery made a tremendous change in his life. He is now able to eat food. He is still on TPN three days a week and he is still on fluids.” “Where I am today versus where I was at ten years ago is totally different.”

Dusty was improving when he met his girlfriend. He told her that he had a health problem and that he was afraid of a commitment, but his trusted doctor took that fear away from him “he's brightened my eyes a bit.”